I’ve done searches on the web about this condition and haven’t come across much definative information. But apparantly it’s pretty rare. So what’s amazing is today I found out that Sully’s clogging teacher has the same thing!!! She spent a few minutes telling me what to expect and how she deals with it in daily life. What a relief to have someone to talk to who knows first hand what it’s like. 🙂 I’m sure she’ll be able to tell me which DR.s are the best ones too. Isn’t that an incredible co-incidence?
This kid is supposed to be ours! I pray every second that the orphanage director thinks so too!!!